We ran a session at the Philosophy in Pubs Oxford group in April 2024, discussing where the moral lines can and should be drawn around the use of data about us. Who does the data really belong to? What are legitimate uses of it? What are the factors that make people uncomfortable? And are they justified? We had a very interesting discussion with around 16 people from the local Oxfordshire area, covering questions such as “Does the idea of the public good ever outweigh an individual’s right to control how their data is used?”, “Is it correct that any data that is “about” us also “belongs” to us, even if we did not create it, nor have any use for it ourselves?”, and “Does it change things if the data is completely anonymised or is there still a general rule about self determination that applies?”
It was really interesting to hear how different people viewed these questions very differently, not just in the field of healthcare data but also more generally. You can find out more about Philosophy in Pubs Oxford events here.
